Nice visit last week with Sarah and Layne. Steve-O enjoyed the banners from Cole’s 3rd grade class and Triple Threat Triathlon team! He’s been working hard in rehab retraining his brain to walk again.
1st Annual Barron Lake Triathlon
August 30, 2014
Olympic:1500M Swim, 40K Bike, 10K Run
Sprint: 200 Yard Swim, 8.3 Mile Bike, 2.4 Mile Run
Individual, 2 Person and 3 Person Team Relay options available
Benefiting Racing For Steve-O
Steve-O has been doing well at Lake Bennett Rehab in Ocoee, FL. Although, he had a slight set back 2 nights ago when he fell out of bed and broke his wrist. He has been at Orlando Regional Medical Center (ORMC) these past couple days for observation, but should be transferred back to the rehab facility tonight. His brothers (Greg and Mike) and Dad (“Smitty” / 93 years old!) are all visiting this week. He’s still in good spirits and looking forward to getting back to rehab!!
Steve-O doing well in rehab. Stood up and transferred to wheelchair by himself with stand by assist. He says to tell everyone “I may be sick, but I’m still handsome !”
Sarah Ingle starts her marathon training today! 5 miles on the snow packed streets 3 degrees (felt like -10) for Steve-O!!
1st Annual Barron Lake Triathlon
Benefitting the “Racing For Steve-O” foundation
August 30th, 2013
Sprint: 200 meter swim, 13.2K Bike, 2.5K Run
Olympic: 1500 meter Swim, 40K Bike, 10K Run
www.barronlaketri.com (Registration opening soon!!)
Steve’s still in the hospital in Orlando (3 weeks now). He’s seizures have lessened and we think Dr’s may have gotten his seizure drug levels under control. Our hopes are that he can be discharged to a Rehab Facility this week to start working on getting his strength back.
Steve-O is still in the hospital in Orlando. He’s been there for 11days now and still fighting to gain his strength back. Seizures have lessened but side effects of tumor and seizure drugs are making it a challenge to recover. Another CT scan to be done today to check on brain swelling. Roxie and Molly are at his side cheering him on! Phone calls, emails, cards, prayers and visits are appreciated! Steve no longer has his iPhone and contacts, so please get ahold of Roxie at 574-323-6862 or Molly 317-340-8568. He’s currently at Orlando Regional Medical Center.
I thought it would be cute if a everyone could send Steve-O some posters with get well, inspirational or funny quotes and have groups of people sign them! He got a big banner signed by the biking group from SpinZone when he was 1st diagnosed and he loved it! If you want to make a sign/poster/card please send them to his house and Roxie will deliver them to him at the hospital. Send to: 752 Summit Greens Blvd. Clermont, FL 34711 Wouldn’t it be awesome to wallpaper his hospital room with them? Figure since most of us can’t be there, at least he knows we’re all thinking about him! Thanks!!
Dad’s still in the hospital in Orlando. It’s been 1 week today. His seizures have gone away, but the seizure drugs make him more weak and tired. So we’re told they are trying to find a balance between managing the seizures and the side effects. Mom still drives into Orlando everyday to stay with him at the hospital. Molly (youngest daughter) will be flying to Orlando tomorrow (wed) morning to visit. The 3 of us (Aaron, Sarah and Molly) have a plan of alternating flying to Florida every week. Best way to get ahold of him is to call Roxie or send emails to firstname.lastname@example.org Thanks for the prayers and support!
MRI shows tumor is still “stable” but slight increase in swelling which could be causing the seizures. These seizures are called Focal or Simple seizures. For dad, they present as contractions/relaxation of the muscles which you do not lose consciousness. Dr’s have switched seizure meds in hopes to get seizure activity under control. He started physical therapy today as well to keep him moving in hopes to gain his strength again. His phone was stolen while he was in the hospital :( so if you want to reach him call Roxie. Thanks for all the kind words and prayers!
Steve and Roxie had a busy month in December with 2nd opinions from Dr’s in Tampa and Miami. Then they spent that last few weeks of the month in Indy visiting Molly’s family then drove to Granger to spend the holidays with Aaron, Sarah (and family) and Molly (and family). For New Years we all drove to Muncie to celebrate the New Year before flying back to Clermont. So they had a busy good time in Indiana! They got to visit with lot’s of friends as well during their stay in Granger and enjoyed that very much!
Towards the end of the visit, and after returning to Clermont, Steve-O was getting increasingly weaker and was having more ticks/mini-seizures. So he was recently admitted to the hospital in Orlando, on Tuesday (Jan 7) for analysis of his situation. Dr’s are currently trying to adjust his seizure medications and run some tests to try and figure out how to stop these ticks/seizures. He had an EEG on Wed and will have a MRI today (Thursday). Hopefully these tests can give us more information. We will learn more today.
Please send thoughts, prayers, cards and phone calls his way. Their address is 752 Summit Greens Blvd Clermont, FL 34711 Unfortunately, his cell phone went missing last night in the hospital so you can call Roxie’s Cell- 574-323-6862 He’s currently at Orlando Regional Medical Center if you’re in Florida and would like to visit.
*HUGE ANNOUNCEMENT!* We’re ecstatic to announce that the “Racing For Steve-O” foundation will be the benefitting charity of the Barron Lake Triathon in Niles, MI!! SAVE THE DATE! August 30th, 2014 There will be an Sprint and Olympic distance! All proceeds raised will go towards scholarships for kids with special needs to be able to go to camps and participate in recreational activities. We have an amazing group of race organizers working hard to make this the race of the year with lot’s of surprises! Steve-O himself say’s, “I hope to compete!” Mark you’re calendars, you won’t want to miss this! Details to follow…
Hello! Just wanted to pass on that I’m going to have an open house for my parents while they are in town so anyone who wants to can stop by and say hello. I know everyone is busy during this time of year so I picked 2 days.
Dec 27th and 30th from 3-6pm.
14831 Copper Penny Dr.
Granger, IN 46530
Email me and let me know if you’re planning on stopping by. email@example.com