Steve-O's Battle Back to the Starting Line...
Steve-O keeping up the good fight!

He never ceases to amaze us! Last weekend, Steve-O stopped eating and would hardly open his eyes. Even during his normally alert times. For about 24 hours there, we were starting to think he had made a turn for the worst. Then, in true Steve-O style, he perked up, started eating and shot out a couple one liner jokes again! He still sleeps most of the time and has limited alert times. It’s getting tougher to get him to open his eyes, but his spirit and appetite remains pretty strong. Our family is just taking things one day at a time. Roxie is doing an amazing job taking care if him, making sure he’s getting the care he needs and asking for assistance when needed. Visitors are still welcome! Thanks for everyone’s continued support, prayers and thoughts!

Charlie Brockus visiting Steve-O from Reno. Fellow Kona tri-guy buddies!!

Triple Threat Team tearing it up for Steve-O at Muncie 70.3 Ironman!  Doug Troyer, Sarah (and Cole) Cira, Lori Crawford, Sandy Zielinski and Doug Eubanks!

Triple Threat Team tearing it up for Steve-O at Muncie 70.3 Ironman! Doug Troyer, Sarah (and Cole) Cira, Lori Crawford, Sandy Zielinski and Doug Eubanks!

7/7/14 Steve-O Update / Hospice care has begun

Steve-O had his last Avastin Chemo treatment last Monday. The Avastin had been slowing the growth of his tumor, but has pretty much run it’s course. He was on Avastin every 2 weeks for about 16 months. Most patients with Glioblastoma are lucky to get 4 months of treatment in before it loses it’s effectiveness, so we are grateful that the medication worked so well for him for so long. At this point there is really nothing more Dr’s can do to stop the growth. The chemo that he received on Monday will stay in his system for at least another month, but really isn’t slowing the growth much more since it’s lost it’s effectiveness. Our focus now is to try and improve his quality of life and keep him comfortable. He has started on Hospice care at this time to try and help keep him as comfortable as possible and give our family the support we need. The tumor has started to grow over the “median” of his brain and has caused increased swelling. This causes him to sleep a lot and have a hard time staying alert during the day. His most alert times are during meals (he still eats and has a good appetite) and the evenings are the best times for him as far as being alert. He’s not in any pain, he remembers who everyone is and still manages to make a “smart” remark every now and then!

Visitors are welcome! Please feel free to stop by (that’s why the came back to Indiana!):

The Hearth at Juday Creek
6330 North Fir Rd #316
Granger, IN 46530

Evenings are his most alert time to visit. You can call Roxie’s cell if you’d like to call first: 574-323-6862.

Mail can be sent to:
Sarah Cira
c/o Steve and Roxie Smith
14831 Copper Penny. Dr.
Granger, IN 46530 

email: steven.smith3007@sbcglobal.net

Triple Threat Triathlon Team “Racing For Steve-O” at Warsaw Triathlon!!

Triple Threat Triathlon Team “Racing For Steve-O” at Warsaw Triathlon!!

Nicole Burdge (Steve-O’s niece) and Ryan Barr representing Steve-O at Effingham 70.3. Nicole finished with a 5:21 and 2nd women overall!!

Shelly Smith (Steve-O’s niece) and Tim Jay are “Hiking For Steve-O” at Sequoia National Park!

Shelly Smith (Steve-O’s niece) and Tim Jay are “Hiking For Steve-O” at Sequoia National Park!

3rd Annual Tri-Chaminade Youth Triathlon in St. Louis was Racing for Steve-O today !! What a great day !! We love you STEVE-O !!!! -Erica Smith and Caroline Burdge (Steve-O’s great nieces!)

Saving turtles for Steve-O!  -Doug Troyer

Saving turtles for Steve-O! -Doug Troyer

Susan G. Koman 5k

Susan G. Koman 5k

Steve-O Neuro-Oncologist Appointment Update from 6/12/14

On top of the whirlwind of events these last few days, Steve had an appointment with his Neuro-Oncologist in Orlando (Dr. Nicholas Avgeropoulos “Dr. Nick”). The most recent MRI was read and showed significant growth and spreading of the tumor. There was not any “new” areas of cancer, so the tumor has remained on the right side of his brain. They have discontinued BCNU chemo treatments which was the newer drug that was added 12 weeks ago when the tumor started growing again. There was hope that the BCNU would stop the growth, but it was unsuccessful. At this time, he will CONTINUE with AVASTIN chemotherapy to help slow the growth of the tumor. This is the same chemo treatment he’s been receiving over this past year.

Steve is still very weak and tired. He sleeps a lot but does have periods of time where he is more alert and able to talk with us and eat. He is not able to walk and it takes a couple people to get him up to a chair. He was able to get in the wheelchair last night and take a short ride outside in the courtyard of their new apartment building. He is staying at an assisted living facility in Granger, IN with Roxie where they have much more assistance and support.

Aaron (son) arrived from Florida yesterday with their car and luggage. He had been staying with them in Florida the last 2 weeks helping take care of Dad and getting everything packed up to come back home. He is flying back to Memphis Tuesday morning. Molly (youngest daughter/Indianapolis) was in town when they arrived for a couple days as well. Sarah (oldest daughter) lives right down the street from their new apartment now.

The apartment has been well stocked with donuts and cookies brought in by his buddies who know his love for pastries and sweets!!

If you’d like to visit, please contact Roxie on her cell or email.

Mail can be sent to:
Sarah Cira
c/o Steve and Roxie Smith
14831 Copper Penny. Dr.
Granger, IN 46530 

email: steven.smith3007@sbcglobal.net

Roxie’s cell- 574-323-6862.

They are staying at:
The Hearth at Juday Creek
6330 North Fir Road #316
Granger, IN 46530