Steve-O’s phone got a good cleaning in the washing machine last night. Although it’s very clean, it doesn’t work anymore! He has a new phone now, same number but lost all his contacts. If you could please call or text him your number so he can put it in his phone again. His number is 574-329-0429. If you’ve been trying to get ahold of him or leaving voice mails the last 4 months, it’s possible he hasn’t gotten them. If you are having trouble reaching him, call Roxie at 574-323-6862. He’s currently in Tampa, FL with Roxie getting a second opinion from Dr. Forsyth at Moffitt. He also has another 2nd opinion in Miami with Dr. Hero and a third “2nd” opinion with Dr. Raizer in Chicago at Northwestern next month. Hopefully someone has an innovative new approach or clinical trial that can help slow the progression of his tumor. Sarah will be visiting in Clermont next week and will go to Steve’s local neuro-oncologist appointment (Dr. Nick) in Orlando. We are hoping the doubled dose of chemo/Avastin is keeping things at bay. They will be in Indy Dec. 19-25, South Bend for the holidays Dec. 26-Dec 31st and Muncie Jan 1st, Chicago Jan 2nd then back to Indy to fly back to Clermont Jan 3rd. Whew!
Aaron Smith, Don Mulhern and Marsha StLedger Wood are “Racing For Steve-O” at the Chattanooga Battlefield Half Marathon. Aaron and Marsha got PR’s and Don brought home some hardware! Proof again that the Steve-O shirt had magic powers!
Cole Cira (Steve-O’s oldest grandchild) has raised $15 selling wristbands for “Racing For Steve-O” after giving a presentation about the foundation to his 3rd grade class wearing his Steve-O shirt! Way to go Cole!!
Congrats to Dean Bullcock (IronDean) and Amy Kuitse on your amazing Kona Ironman achievements! The Bullock and Kuitse families met while cheering on Dean and Amy. Unfortunately they didn’t get a picture all together, so the Bullock family was kind enough to send us these 2 photo’s! Dean was chosen by Kona Inspired to fulfill his dream of competing in the Kona Ironman. He was diagnosed with Glioblastoma a couple months after Steve-O and had gone through treatments and surgery while also training for Kona. He gave it a gallant effort and was a few miles away from the run transition when he missed the cut off time. We applaud Mr. Bullock for his amazing inspiration and proving that “Anything is Possible!”
Congrats to Tim Legge who “Raced For Steve-O” at the Grand Rapids Marathon with time of 3:12.40!! PR by 7 minutes and a BQ!! By the way, the last 3 marathoners that wore their Steve-O shirts have all qualified for Boston! Coincidence or do these shirts really have super powers?? Humm?
Congrats to Ann Amico Moran for running a 3:44.42 at the Marine Corps Marathon while Racing For Steve-O!!
Steve’s birthday is coming Oct 20th! If you’d like to send him a card, their address is Florida is 752 Summit Greens Blvd. Clermont, FL 34711 or email at firstname.lastname@example.org
Steve was taken to the hospital in Orlando saturday night for left sided weakness and not being able to walk. He stayed overnight for evaluation and a MRI. While he was there his weakness improved and slowly was able to regain his usual slow gait. His MRI showed “some progression” to the tumor site. Due to the progression, the dr’s need to change his treatment regimen to hopefully prevent further progression. His doctors at MD Anderson (neuro-oncologist, radiation oncologist and neuro surgeon) are meeting thursday during their Tumor Boards to discuss the next step in his treatment. This will probably involve an increase in his chemo drug Avastin with an addition of another chemo drug. They also increased his seizure meds to prevent him from taking so much of his “as needed” seizure drug that caused him to become drowsy and makes him sleep a lot. He will begin physical therapy at home to help increase his strength and flexibility. He is at home now in Clermont with Roxie. You can email him at email@example.com to wish him well. As always, phone calls, prayers, cards and visits are welcome!
Sarah Cira “Racing For Steve-O” at the Chicago Marathon! Boston qualifier and 23 minutes off my personal record! My legs got me through the 1st half, thoughts of my dad and his example of pure guts and determination got me through the rest! Love you Dad!!
Thank you Dennis for your recent Steve-O Jar collection! Amy Kuitse is collecting jars this week as she is “Racing For Steve-O” at the Kona Ironman World Championships!! http:// www.racingforsteveo.org/amyk11
Molly Smith Woody, Jill and kids all walked for cancer and Steve-O today in Indy! Congrats to Molly on raising $200 for “Racing For Steve-O”!! Donations still accepted at www.racingforsteveo.org/mollywoody
Support Molly Woody, Steve-O’s youngest daughter, as she participates in St. Vincent Cancer Walk! Please help her reach her goal of raising $500 for the Racing for Steve-O Foundation. The money raised will help give children the opportunity to be involved in sports and athletics regardless of their physical, mental and financial barriers. Lets keep fighting the fight! www.racingforsteveo.org/mollywoody