Thank you to Phil Patterson for bringing out his “Steve-O” bike for all of us to sign tonight before our ride. I’m still blown away by all the love and support out there for my dad.
Steve is still hanging in there but in the end stage of his life. His words are few and alertness continues to decrease. He will occasionally open his eyes or reach out to shake hands of visitors. He loves to hear stories of everyone’s training and races. He may not always respond, but he can hear us and responds with a nod. His appetite is decreasing and it’s getting harder for him to eat.
He is very comfortable and not in any pain. When he’s alert, his mind remains pretty clear and he knows who everyone is. He even told me (Sarah) the other day that I drive him nuts! Which made me laugh! At least he’s still honest! We are all doing OK and taking it day by day.
Please don’t hesitate to stop by and visit. Roxie’s cell is 574-323-6862 and they are still at The Hearth at Juday Creek off Fir Rd in Granger, IN.
Congrats to Nicole Burdge (Steve-O’s niece) on an amazing finish at Ironman Boulder! Way to go Nicole!!
Check out Phil Patterson’s new bike! “Friend’s of Steve-O” to raise awareness of brain and other cancers. Awesome!
He never ceases to amaze us! Last weekend, Steve-O stopped eating and would hardly open his eyes. Even during his normally alert times. For about 24 hours there, we were starting to think he had made a turn for the worst. Then, in true Steve-O style, he perked up, started eating and shot out a couple one liner jokes again! He still sleeps most of the time and has limited alert times. It’s getting tougher to get him to open his eyes, but his spirit and appetite remains pretty strong. Our family is just taking things one day at a time. Roxie is doing an amazing job taking care if him, making sure he’s getting the care he needs and asking for assistance when needed. Visitors are still welcome! Thanks for everyone’s continued support, prayers and thoughts!
Triple Threat Team tearing it up for Steve-O at Muncie 70.3 Ironman! Doug Troyer, Sarah (and Cole) Cira, Lori Crawford, Sandy Zielinski and Doug Eubanks!
Steve-O had his last Avastin Chemo treatment last Monday. The Avastin had been slowing the growth of his tumor, but has pretty much run it’s course. He was on Avastin every 2 weeks for about 16 months. Most patients with Glioblastoma are lucky to get 4 months of treatment in before it loses it’s effectiveness, so we are grateful that the medication worked so well for him for so long. At this point there is really nothing more Dr’s can do to stop the growth. The chemo that he received on Monday will stay in his system for at least another month, but really isn’t slowing the growth much more since it’s lost it’s effectiveness. Our focus now is to try and improve his quality of life and keep him comfortable. He has started on Hospice care at this time to try and help keep him as comfortable as possible and give our family the support we need. The tumor has started to grow over the “median” of his brain and has caused increased swelling. This causes him to sleep a lot and have a hard time staying alert during the day. His most alert times are during meals (he still eats and has a good appetite) and the evenings are the best times for him as far as being alert. He’s not in any pain, he remembers who everyone is and still manages to make a “smart” remark every now and then!
Visitors are welcome! Please feel free to stop by (that’s why the came back to Indiana!):
The Hearth at Juday Creek
6330 North Fir Rd #316
Granger, IN 46530
Evenings are his most alert time to visit. You can call Roxie’s cell if you’d like to call first: 574-323-6862.
Mail can be sent to:
c/o Steve and Roxie Smith
14831 Copper Penny. Dr.
Granger, IN 46530
Nicole Burdge (Steve-O’s niece) and Ryan Barr representing Steve-O at Effingham 70.3. Nicole finished with a 5:21 and 2nd women overall!!